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Finally I was getting better, I was down to 3-4 poos a day, feeling better in myself, and boy was I ready to go home! The hospital staff had been great, very attentive and kind, but hospitals are weird places to be in for too long, after nearly four weeks I was glad to be escaping, back to my family. The doctors agreed to let me go but of course you can’t just walk out there and then, it was the next day before I got to go and even then leaving took all day, by the time they had done all the paperwork and organized me a huge bag of drugs to take home. I was leaving with instructions to take over 20 pills a day, which is a lot, but at least I no longer needed IV drugs. Eventually at about 5 in the afternoon I left the ward, but then had to go to the discharge ward which took another hour. Before I left the hospital the Registrar came to see me and very briefly told me about another drug that they wanted me to take when I left called Azathioprine, he was quite brief in his description of what it was but left me some notes about it and said I would probably be on it for at least 4 years. Anyway I when I read the information about the drug I was somewhat concerned as the side effects were quite bad, possible lymphoma being one of rarer side effects as well as bone marrow problems and low white blood cells, basically it just squashes your immune system so it doesn’t do much, thereby reducing any inflammation in a similar way to ciclosporin, in fact it is used in organ transplants to prevent organ rejection. Well I didn’t much like the sound of all that – the risks seemed to outweigh the benefits to me, and I don’t think that long term drug use is a good idea for anyone. So I didn’t start taking it and the next time I saw the consultant I somewhat nervously told him that I didn’t want to take Azathioprine. To my relief he was very understanding, he explained that it was their standard treatment plan for Ulcerative Colitis to prescribe Azathioprine & Pentasa, but that he had other patients that were managing on just Pentasa alone. We agreed that I would just take Pentasa and see how things went. This was a big relief to me as I really didn’t want to take Azathioprine, and if i had have started to take it I think that stopping it would have been very difficult.

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