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Ok, things really weren’t improving much after over a week on IV steroids, and not only was I worried but my family and the doctors seemed to be as well. So, I had a visit from my Doctor and his junior doctors and they explained that things weren’t improving as well as they had hoped, and started to explain possible other treatments. The gastroenterologist explained that there were two more drugs that may help my situation but that had some possibly quite serious side effects. Alternatively I could have my colon surgically removed (colectomy) which would effectively cure the Colitis because I wouldn’t have colon anymore, I would have a colostomy bag instead. They explained that the next drug to try called Ciclosporin (cyclosporine) could cause seizures and other complications which I can’t even remember now but that it would probably be OK for me. I was left to think it over as to what I would prefer to do, and I must admit that to begin with I was almost ready to have them chop me open and take my colon away, it was causing me so much pain and distress that it seemed like a good option, I talked it over with my wife who said she would support me whatever I decided. Complete removal of my colon would mean I would never have to go through a colitis relapse ever again as well. It seemed like the most effective way to get better. But when I started to read about what was involved, I very soon realised that if at all possible it was something to be avoided and wasn’t really the easy solution I was imagining it to be. Since recovering I have met 2 people who have had the colectomy for colitis, 1 had the full thing out about 20 years ago, and still to this day claims to have stomach problems, and another who has had the more modern partial removal and putting back together without the need for a colostomy bag, and still has problems with colitis, so it seems to me that in fact it isn’t the complete cure that I thought it was. I’m just glad I didn’t go down the surgical route because there would have been no going back.

Next up was a meeting with the doctors – GI, Registrar, Junior Doctor, and me, my wife and parents all around my hospital bed which had just been moved out of my own room and on to the main ward in a room with 5 other people. So they pulled the curtains and the GI doctor explained the situation, the junior doctor at the end of the bed looked like she was trying not to cry, which surprised me. Anyway I decided to go the drugs route and take ciclosporin and if that didn’t work out then reconsider the surgical option, which the doctor assured me was the right way to go, but that the surgical team would still come and see me to check me over in case anything needed to be done in a hurry.

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